SLIDESHOW: Living with Pompe
Pompe is a rare, progressive and often fatal neuro-muscular disease, causing progressive muscle weakness throughout the body.
Despite being bound to his wheelchair and dependent on a breathing apparatus 24/7, the disease hasn't stopped Juan Magdaraog from trying to live a normal life.
This is his story: a story of coping and living a life that matters not only to himself but to others as well.
Magdaraog is a patient-advocate of the Philippine Society for Orphan Disorders, an organization that aims to help sustain a better quality of life for individuals with orphan or rare disorders.